‘Where do I go from here’? A cultural perspective on challenges to the use of hospice services
Authors: Frey R et al
Summary: This paper describes outcomes from a project that set out to
identify the challenges to hospice service access for NZ Māori, Asian and
Pacific patients. The researchers conducted qualitative interviews with
37 cancer patients (Māori, Pacific and Asian self-identified ethnicities),
whānau/family and bereaved whānau/family, as well as 15 health
professionals (e.g. referring GPs, oncologists, allied health professionals)
within one District Health Board. Patients and their families included
both those who utilised hospice services, as well as non-users of
hospice services identified by a health professional as having palliative
care needs. The paper reports a lack of awareness in the communities
of available services, and continuing misconceptions concerning the
nature of hospice services. Language barriers are a problem for Asian
patients and their families. Respondents reported issues concerning the
ethnic representativeness of the hospice services staff. The paper makes
suggestions as to how hospices can provide high-quality evidence-based
palliative care services for patients and families and consultative services
to primary healthcare providers in the community.
Reference: Health Soc Care Community. 2013 May 3. [Epub ahead of print]
Abstract